Monday, July 9, 2012

The Short Version

Basically, here's what we know at this moment...

Last Tuesday, my doctor had 4 major concerns about Elliana.  One was very serious, life-threateningly serious - her brain.  One was somewhat serious, but surgically 'fixable' - her heart.  And two were somewhat minor. 

Today, although we did not get a confirmed diagnosis, we did get some answers about Elliana's heart.  And it wasn't terrible news.  It wasn't great, but it wasn't awful.  The pediatric cardiologist said from what he was able to see, he believes that Elliana falls into the 'mild to moderate heart disease' category.  He thinks she either has Pulmonary Stenosis or Tetrology of Fallot.  Both conditions can be treated, and neither has to be treated immediately after she's born.  That was 'good' news.  After what we heard last week, either of these diagnoses feels like a breeze.  This doctor wants to continue to watch Elliana as she grows over the next 4 months to try to confirm the diagnosis.  So I get to watch her do her little riverdance every 4-6 weeks with the cardiologist.  Little Elliana is certainly getting lots of screen time. :-)

Jason and I both feel a degree of relief, but there is still so much uncertainty about Elliana's brain.  Both doctors we saw last week, my OB and the maternal-fetal specialist, felt that what they saw in her brain was most concerning.  Of more concern than her heart.  The flaws in her brain could be what takes her little life. 

So, we were relieved to not hear more awful news.  But I think neither of us feels any more hope than we did yesterday.  So we wait.  Next Tuesday, the maternal-fetal specialist will take a closer look at Elliana's tiny, growing body, and maybe he'll have more answers for us.

I know Who formed her body.  I know Who holds her future.  He answered me again today:  the flaws in her heart were not nearly as awful as I feared.

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